Demiurge
12-11-2005, 04:06 PM
My good friend, Kelley, has been going through a lot lately with her husband who was suddenly diagnosed with anaplastic large cell lymphoma with small cell variant CNS disease in leukemic phase. It's one of 6 cases every recorded in the world. It was a shock to us all, and it's especially tragic give his age of just 29. They have 2 beautiful children, Kya & Aidan, so this is an especially trying time for them all. I received an email this morning with the following update, and it was very hard to read given how close we all are.
* Edward went through alot yesterday. Sometimes his situation was changing from minute to minute. As you can imagine, it was a very emotional and somewhat confusing time for the family and all of you, our friends. Obviously, this created lots of potential for miscommunication and misunderstanding. Here's the situation...
* Ed is still in ICU, Ward 6D, in a chemically induced coma. The sedation drugs are keeping him free from pain and anxiety. We thank the Lord for the wonderful grace of these means of minimizing his suffering.
* Yesterday Ed's oxygen saturation level dropped dangerously during a CT scan, and it took a few hours to bring it back up. The doctors are certain that his brain is still functioning, but the question of brain damage cannot be answered presently. Sometimes this happens and people are OK.
* Ed's vital signs stablized during the night and have remained very good. His oxygen level is good, his heart rate is excellent, his fever is down, and his blood pressure is fair. Of course, any or all of these could change in the time it takes to read this sentence.
* The doctors reminded the family that these improvements are relatively small in the big picture and that Ed's longterm prognosis is still extremely poor.
* Though Ed's immediate family had decided to take him off the ventilator in light of his condition, his improvements have given them new hope! He is going to begin another chemo treatment today, but his situation is still moment by moment.
* Ed's family is convinced that rest is critical right now, and so they desire to limit visits and maintain some guidelines for visitors.
Please send prayers if you can. I appreciate it.
* Edward went through alot yesterday. Sometimes his situation was changing from minute to minute. As you can imagine, it was a very emotional and somewhat confusing time for the family and all of you, our friends. Obviously, this created lots of potential for miscommunication and misunderstanding. Here's the situation...
* Ed is still in ICU, Ward 6D, in a chemically induced coma. The sedation drugs are keeping him free from pain and anxiety. We thank the Lord for the wonderful grace of these means of minimizing his suffering.
* Yesterday Ed's oxygen saturation level dropped dangerously during a CT scan, and it took a few hours to bring it back up. The doctors are certain that his brain is still functioning, but the question of brain damage cannot be answered presently. Sometimes this happens and people are OK.
* Ed's vital signs stablized during the night and have remained very good. His oxygen level is good, his heart rate is excellent, his fever is down, and his blood pressure is fair. Of course, any or all of these could change in the time it takes to read this sentence.
* The doctors reminded the family that these improvements are relatively small in the big picture and that Ed's longterm prognosis is still extremely poor.
* Though Ed's immediate family had decided to take him off the ventilator in light of his condition, his improvements have given them new hope! He is going to begin another chemo treatment today, but his situation is still moment by moment.
* Ed's family is convinced that rest is critical right now, and so they desire to limit visits and maintain some guidelines for visitors.
Please send prayers if you can. I appreciate it.